Muscular Dystrophy UK (previously known as the Muscular Dystrophy Campaign) is a charity that brings individuals, families and professionals together to beat muscle-wasting conditions.
Founded in 1959, the charity deals with more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 100,000 children and adults in the UK. It also: supports high-quality research to find effective treatments and cures for all muscle-wasting conditions, campaigns for faster access to emerging treatments and specialist NHS care and support and provides a range of services and resources to help people live as independently as possible.
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Anyone can contact the charity